music — Happy Mother's Day

Friends... indulge me, you know I get hyperfocused on certain ideas. Or ignore me, this thread may not be your jam. All good.

Holy Week is precious to me. Having been born on Good Friday and believing deeply in the message of Easter, I love Holy Week. Even if you don't share my faith, I think there are powerful and universal lessons in Holy Week.

"Hamilton" is beyond entertaining to me. It is a masterful show and score that also represents certain themes that I hold dear and believe in deeply.

Hospice is my passion and the level of healthcare where I have learned the most as a nurse and a person.

Holy Week, Hamilton, Hospice... a four day thread....

Today is "Maundy Thursday" or "Holy Thursday". The day of the Last Supper with Jesus and his disciples. IF you want pure biblical knowledge, this isn't the Facebook page for you. BUT, if you want to know what strikes me about this day and how I experience it in "Hamilton" and in hospice care, let me explain.

I have always believed that one of the most precious gifts that hospice can provide is allowing loved ones time (sometimes quick) to say goodbye. To complete life's work. To prepare.

At the Last Supper, Jesus was trying to say goodbye to his disciples. He knew the fate that awaited him. So he brought his precious friends together and shared a special meal.

"Maundy" is from the Latin word "to command" and Jesus commanded his dinner companions the thing he most wanted them to carry on: "Love one another as I have loved you" Jesus knew in the coming days there would be a lot of noise in his disciples heads but this command had to be clearly said and purposefully delivered.

In "Hamilton", one of the most poignant scenes and powerful songs (IMHO) is when George Washington tells a disbelieving Alexander Hamilton that he is not running for re-election. In the song "One Last Time" George Washington 'commands' Hamilton to write Washington's farewell to the nation that he helped create. At first, Hamilton, like Christ's disciples, rejects any notion of the beloved leader stepping away from their role but Washington, like Christ, stands firm on his purpose to step away and allow the created legacy to carry on without him.

For my two cents from experience, goodbyes matter. Even though they are sad.

"If I say goodbye, the nation learns to move on,

It outlives me when I'm gone..."

"Love one another as I have loved you"

Holy Week, Hamilton, Hospice... more to come...

Welcome to Day 2 of Holy Week, Hamilton and Hospice (aka: my strange fascination)... Today is Good Friday, the day Christians commemorate the crucifixion of Jesus Christ. (Today is also first day of Passover- blessings to all who celebrate).

Good Friday is arguably the saddest day of the Christian calendar, it's really only palatable now because we have the luxury of knowing Easter will come on Sunday. On the day of the crucifixion, that was not known, and the pain of the loss for those that loved and followed Jesus was unimaginable.

"There are moments that the words don't reach,

There is suffering too terrible to name

You hold your child as tight as you can

And push away the unimaginable..."

"It's Quiet Uptown" is undoubtedly the most haunting song in the "Hamilton" score, as it is what plays after Hamilton's son is killed in a duel. I've only seen "Hamilton" performed live once but I can tell you the audience is breathless and silent as the bereaved sing their pain.

A child killed. A man crucified. Unimaginable.

Many of the families I came to know as a hospice nurse, that allowed me to be a part of a very sacred journey with their loved one were going through the unimaginable. I've had the privilege of being at the bedside for several deaths but I can tell you that the last breath isn't typically the moment that is the most devastating. It is the finality of the moment the body leaves the home or facility and is covered or wrapped for the last time that is.. unimaginable.

"There are moments that the words don't reach

There's a grace too powerful to name

We push away what we can never understand

We push away the unimaginable.."

In "Hamilton" it is only when Eliza takes Alexander's hand that we feel a modicum of peace because we know by that action they will grieve together. On the day of Jesus's crucifixion "standing by the cross of Jesus were His mother, and His mother's sister and Mary Magladene" (John 19:25)

So maybe the Good Friday lesson of Hamilton, Holy Week and Hospice is the most simple- in the moments of the unimaginable, pull together. Hospice professionals know with certainty the importance of presence in those moments of greatest difficulty. Grief, in all its iterations, before Hope can be restored, can be so isolating. Let's try- maybe?- to make it less so..

Day 3 of Holy Week, Hamilton and Hospice.. (my strange fascination). Thanks to everyone for the kind words on the past two posts- seems like Jesus and show tunes has a bit more resonance that I might have realized!

Today is Holy Saturday, the day in between, the one in which we are held in pensive suspense. I have said before I think Holy Saturday is where we live, holding space between hope lost and hope restored. I don't know a living soul who cannot reflect on at least one period in their life where they were in between the "holy shit, what just happened?" and "you know, I think I am going to be ok" and just managed to put one foot in front of the other.

I wasn't sure which song from "Hamilton" I felt best delivered the message and feeling of Holy Saturday, and then it became obvious. "Wait for It" (yes, that's really it, "wait for it" ) Lin Manuel Miranda has said it may be the song he is proudest of and when performed live, it packs a wallop. Sung by Aaron Burr, the misunderstood everyman of the story, "Wait for it" is a lament about endurance.

"Death doesn't discriminate

Between the sinners and the saints

It takes and it takes and it takes

And we keep living anyway

We rise and we fall and we break

And we make our mistakes

And if there's a reason I'm still alive

When everyone who loves me has died

I'm willing to wait for it (Wait for it)

I'm willing to wait for it..."

Look around (see what I did there, Hamiltonians), suffering is indiscrimnate. Illness and misfortune can be indiscriminate. Grief and loss are universal. "And we keep living anyway, we rise and we fall and we break.."

The brand of the original Holy Saturday is marked by quiet waiting or pregnant expectation and yet I believe the Holy Saturday is the hallmark of endurance and survival.

As a hospice nurse, people always ask me "how do you do it?" I have never known quite how to answer that because I am not really sure why I chose this and love it so much. I am sure, however, that I do it because it matters to the people that need the help and if they can endure their present circumstance of illness or impending loss then I can be present for that. In fact, I really can't imagine not.

One of my dearest patients is living in Holy Saturday and has been for a few months now. The things in her life that made her unique and gave her joy are mostly gone, but she is still here. She is a faithful believer is Jesus and is more than ready to go to Heaven, but for right now, we have to "wait for it.." Waiting for it defines faith in its most essential way.

Peace. See you tomorrow.

The grand finale to Holy Week, Hamilton and Hospice- more "H's"... He is RISEN! Happy Easter!! Hope restored!!!

Easter Sunday, the stunning conclusion to the greatest story ever told. The song choice for this last entry is probably pretty obvious, "Who lives, who dies, who tells your story"

"And when you're gone, who remembers your name?

Who keeps your flame?

Who tells your story?

Who tells your story?"

There are A LOT of messages to unpack in "He is not here: For he is risen" (Matthew 28:6) and I could go on all day about the beauty and power of the resurrection, but the final song in "Hamilton" does such a beautiful job representing something my hospice experience taught me well and that is the importance of legacy.

One of the reasons I believe hospice care is so important when done well is a peaceful death, while sad, allows a family to grieve the life that was lost and not just the way it was lost. I have unfortunately been present in ICUs and ERs for sudden deaths, catastrophic deaths where families had to observe what no one should have to: suffering. When I became attracted to hospice work, I was very clear in my conviction that if I couldn't change the outcome of a person's illness, I could sure as shit work to make sure the experience was a peaceful one. It didn't always work, but the effort was always there.

Hamilton was shot, that was not a peaceful death. Christ was crucified and probably nothing could be worse, so this analogy may fall short on their experiences, but my point still carries validity. Hamilton's wife worked to tell his story so his legacy would be about what he did for our country and not how he died.

And Jesus, well that's a legacy like no other. We mourned his crucifixion but we celebrate his resurrection and we, as Christians, strive to live by His example.

"You could have done so much more if you only had time

And when my time is up, have I done enough?

Will they tell your story?"

Eliza explains that in Hamilton's memory she opened the first private orphanage in New York City. "In their eyes I see you, Alexander". Families who have lost someone dear go on and point out who got their Dad's crooked smile or will make the only edible fruitcake every year from their Mother's recipe. Others may become galvanized to raise funds to fight the disease that took their loved one or awareness about end of life care planning. And today the followers of Jesus may have donned their best bonnet, gone to hear the choirs sing or they may just find a way to love their neighbor, as they were commanded to do.

This "series" has reminded me, at least, how much goodbyes matter, how sad and lonely loss can feel, how much we need the stubborn determination of Holy Saturday and how important it is to celebrate lives well lived. To tell their story.

"I can't wait to see you again,

It's only a matter of time..."

Love y'all!