Help in Humboldt

Why do I spend my Sunday mornings like this?

HOPEspotters, most of you know I am a devout lover of sports. I follow all the major leagues and teams at both the college and pro level and really put the “fanatic” in the fan for the teams I love. And while I may not be an expert at the X’s and O’s for each game, I study all the players and the coaches in order to keep current.

I am genuinely not a competitive person, by nature, which is probably good since my own career in sports forced me to get pretty familiar with the “L” column. Sure, I like to win, maybe even love it, but the thrill of the kill isn’t the thing that sports feeds me.

Following sports, from pee-wee softball to the NFL, fulfills my love of stories. Stories that provide the most fascinating allegories for life. So many stories, so many lessons.

And no one- I mean no one- tells those stories better than the team at ESPN that produces “E:60”.

On the busiest of days, I have found myself stopped in my tracks, suddenly captivated by the tale of a legless wrestler, a deaf football team, a college basketball player who survived TWO plane crashes, presented by Jeremy Schapp and Bob Ley.  And at the end of each story, I’m usually crying, often breathless, and always reminded of the resiliency of the human spirit. There’s gifts, there’s hardships, there’s redemption and there’s inspiration. Sometimes, it is better than church.

I had the chance to meet Jeremy Schaap at an ALS Fundraising Gala in Atlanta two years ago and  I went kind of ‘fan girl’ on him. He was a true gentleman and asked why I was attending the event. When I told him I was generously asked by a family who lost a loved one to the awful disease, and I had participated in her care, he was effusive with praise for the role of the hospice nurse. A table turn I did not expect. What we agreed upon in the course of our conversation was this: we loved our jobs. The people we meet inspire us and their stories never leave us. Sometimes it can be very emotional to listen to their stories, but when we allow ourselves to be open to them, there is always beauty.

So me and Jeremy… ya… peas and carrots…

Anyhoo, Mr. Schaap and his team just produced another doozy, “Humboldt Strong”. While unloading the dishwasher this morning, I turned on the TV which was already tuned to ESPN from last night’s Final Four games.

“Humboldt Strong” is narrated by Wayne Gretzky and tells the unbelievably tragic story of the horrific bus crash involving the Junior Hockey team, the Humboldt Broncos, from Humboldt, Saskatchewan. On April 6, 2018, on the way to a play- off game, the Broncos’ bus was hit by a semi- truck that ran a stop sign. This catastrophic and devastating event led to 16 deaths. There were 13 survivors, two of whom were paralyzed and two with significant traumatic brain injuries. The number of hearts broken by the incident is immeasurable. The accident sent the community, the country, the hockey world reeling. It was the worst mass casualty auto accident in Canada’s history and it was another example of the unbelievable and incomprehensible fragility of life.

The story of the Humboldt Broncos can be dissected on so many different levels. There’s loss, there’s grief, there’s anger, there’s determination, there’s community spirit. There’s a lot in the mere 60 minutes allowed to the story. A story, I am sure, that only one year later, isn’t over yet.

But there was one detail, a fairly small one, in fact, that has stuck with me today- resonated, perhaps.  During this. season of Lent, this detail seemed to illuminate a timeless and often redundant question that has to do with feeling forsaken and seeking healing.

In classic E:60 fashion, the narration gets slower as the recounting of the inevitable accident approaches. The bus is shown traveling a two lane highway that seems to be in the middle of nowhere.

“At 4:58 PM, the charter bus carrying 29 Humboldt Broncos players and coaches, crossed the intersection of…. and was hit by a semi truck driving at….” “The top of the bus was literally ripped in two….” “The cargo that was carried by the truck had been spilled all over the landscape..”

“At 5:16, the first batch of emergency responders arrived…”


4:58.


5:16.

18 minutes.


1,080 seconds.

Impressively fast for the middle of nowhere. And yet… 18 minutes. E.I.G.H.T.E.E.N minutes. One thousand eighty seconds.

As I watched the rest of the documentary, I was utterly distracted, fairly haunted, by those eighteen minutes. What was it like for the people who survived the initial impact to wait 18 minutes? And I bet 18 minutes seems a lot longer when one doesn’t know if it will “only” be 18 minutes? And you’re in pain, and scared? And I think it is pretty cold in Saskatchewan, Canada in April, eh?

Eighteen Minutes.

And then I started to think less about the length of time those poor young men, and a few women, had to wait for help and more about if they wondered if it was coming at all. When your life gets literally blown apart by a semi truck going at full speed, I would imagine it would be normal, understandable, in fact, to question or even lose faith. Maybe in their panic and pain, they felt forsaken.

And then, of course, I started to think of all of us, who at times have been lying in a cold field, in pain and scared, and wondering when help is coming and if it will come at all. And sometimes, in the metaphor, we sit in that cold and in that pain for a hell of a lot longer than eighteen minutes.

“Mr. Jones, there were some unusual findings in your colonoscopy. We’d like you to schedule an MRI but it looks like the next available appointment isn’t available until next month.”

“There are clearly some abnormalities on the fetal ultrasound but things might change throughout the course of the pregnancy and the severity won’t really be clear until…”

“We won’t know how quickly this is going to progress and while there are some medications that might slow things down, statistics generally show that at Stage IV…”

“You’re leaving? Just like that? You’re leaving me?”

What about the people who love someone with an addiction and wonder if he or she will ever get “clean” (I hate that term, by the way) and sober?  Or the poor people who have a loved one that has gone missing, been taken, run away- and they lay on that metaphorical field in Canada wondering when the HELL help is ever going to come? Waiting out the storm can seem unbearable…

And maybe, sometimes, the wait is so painful, the thought of just surrendering to death seems inviting. Case in point, the recent suicides by the Parkland shooting survivors or the father of the Sandy Hook shooting victim. That man, Jeremy Richman, lay in that cold Canadian field, in apparent acute pain, so profound that the help he waited for for 6 years and 3 months, seemed for him to never come. And he couldn’t wait anymore.

And that, is terribly sad.

Just like some of the Humboldt Broncos, some bodies cannot stand the injury any longer and they cannot survive the wait. I pray that help has arrived for him, and others who’ve suffered like him, in a more peaceful and less tormented place.

My faith, my life experience and everything I stand for has taught me that help will always come- some way, somehow, some day a first responder will arrive. Sometimes it takes an excruciatingly long time. Maybe we’re not ready for them when it does arrive. Often times it isn’t in the form we expect, but I believe to the core of my soul that help always comes.

16 Humboldt Broncos died that day, but 13 survived. And after seeing the footage from the actual wreckage, that is 13 undeniable miracles. Because help showed up. It got there and it did what it needed to do.

Last year, I was giving a few remarks at our annual hospice bereavement service- an hour of remembrance for the loved ones of those who died in our program the previous year. My remarks included my “go to” phrase “I know it is never anyone’s best day when I, the “hospice girl”, shows up.” I understand the gravity of the situation if I have been called in. I was pleasantly surprised, however, at the end of the service, when a family member of a former patient came up and told me, “You should stop saying that. I was thrilled when you came. I felt like we were finally at a place where Mom wasn’t going to suffer anymore. I was so relieved. Throughout the course of her terrible illness, I think it was my best day.”  

Huh. Help- in a form other than expected- but help, nonetheless.

In my limited experience talking with people who’ve battled addictions, they are often very open about their rock bottom day. In trusted conversations, they share the circumstances that caused them to throw up their arms and cry, “Mercy” and most bless that day, because when they courageously surrendered their substance abusing ways, that was when the help came. And that was when they let the help in.

Ryan Leaf, former NFL quarterback, known for being a big time ‘bust’ with a bad attitude fell deeply into substance abuse after his career ended prematurely and he wound up in prison. His life is now turned around completely and he is devoted to helping others battle addiction and prevent drug abuse, through regular speaking engagements and one on one counseling. He’s taken his painful past and given it grace by sharing his experiences with others so that they may avoid similar pitfalls. On April 1, 2019, he tweeted, “7 years ago today I woke up on the floor of a prison cell.. I had nothing to live for, or so I thought. If I had known the size of the blessing that was coming, I would have understood the magnitude of the battle I was fighting. I got up, there is Hope!! #7yearssober”

Ryan’s 18 minutes played out of the course of a very scary and lonely and painful decade, but help did come. (And look at that, I am back to sports…)

And, oh yeah, there is another really good story about fear and pain, waiting and praying, wreckage, loss and redemption. Some people call it, in fact, “The Greatest Story Ever Told” and it’s final chapter is coming to churches near you in just two short weeks.

Spoiler alert: help comes. Not before sadness, not in the absence of fear, but it shows up BIG TIME.

Back in Humboldt, Saskatchewan, there is a large memorial at the site of the crash that occurred just over a year ago. The documentary shows how each of the featured ‘victims’ and their families are getting on with their lives. Clearly, there is still a lot of grief work to be done. No one is lying by the side of the road anymore, but there is still a lot of pain. The wounds are deep and large and the fractured hearts and hope and dreams are extensive. It is clear as the survivors and the family members of those that didn’t survive speak, there is a longing for help- or better said for healing- to arrive.

I hope they know that it will.


It absolutely will.

Saint-ly Lessons

When I started this blog two years ago I had lofty aspirations. I believed I would publish regularly, provide insightful content, and move towards a bigger platform.

I've done none of that.

I wanted this blog to be an expression of things I’ve learned as a cancer survivor, a hospice nurse and a mother.

Unfortunately I fear my subject matter, my passion topics, have become redundant. Add to that my aversion to offend anyone, I may be stale and boring.

Well, HOPEspotters, hang in..please. Because here I go, again!

I love NFL football. I grew up loving my family time surrounding NFL games. As an adult I’ve become an avid and passionate fan. To be honest, I don’t totally understand people that don’t follow football, but I don’t want them to quit reading- yet.

This past weekend was the NFL Conference Championships. NFC featured New Orleans Saints vs. Los Angeles Rams and AFC featured Kansas City Chiefs vs. New England Patriots.

Both home teams lost. Rams beat Saints. Pats beat Chiefs.

Winners go to Super Bowl and losers painfully go home. At this stage of the season, stakes are high and outcomes matter.

Just like life.

The NFC Championship game, featuring the New Orleans Saints v. Los Angeles Rams had a highly controversial “non” penalty call. The pass interference committed by Nickell Robey- Coleman (Rams) against Tommie Lee Lewis(Saints) has been replayed over, and over, and OVER again.

The officials blew the call. Coleman committed pass interference. No one disputes that now.

For the non football followers, that game went into overtime and following an interception thrown by Drew Brees, the Los Angeles Rams capitalized on the opportunity and won the game.

The Rams victory was much to the dismay of the New Orleans fans.  These same Saints fans already suffered a last minute loss in the 2017 playoffs. These same Saints fans really love their team and struggled to comprehend the impact of the infamous missed call.


Losing hurts.


This particular loss has created a chaos of “UNFAIR” cries because of the missed call at a crucial moment. The New Orleans Saints fans have screamed with an unprecedented noise that has included billboards, law suits, boycotts and everything angry.  They are, understandably PISSED. But I am going to stick my neck out and say that there is a purpose in this.

I love so many things about sports. The thrill of victory. The overcoming of adversity. Underdogs. Hard work. Team work. So many life lessons.

Sports gives us the fantastic and attractive opportunity to exercise our necessary life muscles. The ones that help us overcome adversity. Manage disappointment. Support our team. Work hard and accept outcomes.

From the beginning of civilization, man has used sport to demonstrate superiority and mastery. But for every winner there is a loser. Historically there have always been close calls, disputed calls, perceived lack of fairness and outcomes that should have turned out otherwise.

Evidence: David. V. Goliath.

Sports friends, to be clear, I have cried the unfair cry more times than I care to remember. When I was 11 I was on a championship winning swim relay team that never got to claim gold in the final meet because of weather. When I was 14 I showed up at swim practice EVERY DAY only to be defeated regularly by a teammate with more god given size and talent.

And, please. As an adult .. a devout Atlanta Falcons fan, please don’t 28-3 me.

New Orleans, and NFL fans at large, I beseech you to remember an important and age old tenant: Life is not fair.

Life. Is. NOT. Fair.

Should it be? Sure, I guess. But it isn’t and sports is the thing that is supposed to help us PREPARE for the unfair curve balls, not cry over them excessively.

How not fair is life? I invite you to visit an infusion center at any major hospital. Please poll the cancer patients in the chairs and ask them about universal justice.

Still not convinced? Spend some time in a NICU- observe babies fighting for life because they were born too soon or battling conditions unfairly placed upon them.

Natural disasters? Not fair. Mass shootings? Hella unfair.

You want to entertain me? Sit me down with an “SC Featured” and talk to me about Eric Berry, James Connor or other athletes who know UNFAIR and came back anyway.

We can be good, try hard, do right and still get bitch slapped with a “I did NOT see THAT coming” sided with a “It is NOT supposed to be THAT way”.

Listen, I am keenly aware that my personal and professional experience may seem to set that ‘perspective’ bar unfairly high. And yet, aren’t I allowed to share my ‘perspective’ bar for the good of us all?

All of us are filled with so many passions and the world right now is angry with passions colliding. Sports are supposed to be fun passions but many of us pour all the the things we want from the world into our rooting interests.  And then when it doesn’t work out, minds are literally BLOWN.

I can imagine a few New Orleans fans I know that may read this and feel awfully salty at my suggestion that embracing the unfairness of life, as bitter as that can be, is actually the best way forward. I’ve personally spent years crying and screaming and beating my head against the brick wall in the chapel of the “life is unfair” church.

It hasn’t gotten me anywhere. If we count up and redistribute all the unfair and missed calls put out in the world, each of us would hide in a corner and pray that we only were delivered what we already had.

Fighting unfair is a losing battle.

Redirection and ultimate victory are the only remedy.


How did I learn that?


Sports. And Life.


But really a lot of sports.


“It is your response to winning or losing that makes you a winner or a loser.”



Happy Anniversary, HOPEspot!

Hopespotters! HOPEspot was born three years ago today. Three years ago, friends and family came to my home to launch this venture.  I was blessed with love and support that night. Those in attendance knew that I needed an outlet, a place to share my thoughts on life (mothering it and hospice-ing it). My husband, months before recognizing my discontent, connected me with a wonderfully creative web designer and HOPEspot was put in motion.

My husband’s initial diagnosis with my discontent was correct. My personal and professional experience was bubbling up in my throat and I needed to vent. I wanted to write but felt insecure with my talent. Three years into my blog, I still feel insecure about my talent. The majority of my followers are people that know me. Sometimes I worry their praise is equal to that of one might receive for looming a potholder because it was a useful application of time with a reasonably satisfactory product.

I started the blog with some shy, short outputs, but that time was marked by my niece’s heart surgery and there were tremendous feelings associated with that season.

Since then, we’ve explored Acts of God, Holy Saturday, 8th grade field trips and This is Us episodes that were life lessons. I’ve collaborated with very special people and felt good about this message.

I tried funny, observant, spiritual and informative. I tried to cover personal and professional and I wanted to make a name for myself as a writer. I still want that.

It is hard to try to be something bigger than I feel. I want to write about things that trouble me and yet I feel incomplete when I can’t make sense of the issues. I want to write from a place of total ego integrity, but I am too honest.

Three years ago, my husband wanted to help me start a blog so I could vent and grow professionally. Three years ago, Obama was still president. Three years ago, #metoo was unheard of. Three years ago, the shootings at the Orlando night club or Mandalay Bay had not happened.

Three years ago I felt younger- and more optimistic.

But this blog, this HOPEspot, has felt like a baby I’ve needed to nurture and help mature. As has been the case with my sons, I’ve made some errors.

I named HOPEspot for a reason. Personally and professionally, I’ve experienced times where answers and resources seemed absent. I know those moments where families look at each other with a love and a frightening void all at the same time.

Those moments SUCK.

My hope for HOPEspot was it would be a resource for those moments that could offer help and humor. If there was anything I could ever offer to families in those moments, I want to do it.

Three years in, I’m not as ebullient. Realities of disease, family, and circumstance constantly smack me in the face.

Three years in, I look back to why I started this and I come upon this:

Pandora.

Pandora was given a box she was forbidden to open. She is all of us. In predictable instant gratification, our girl opened the box and let out a host of evils she didn’t intend to release. In a panic, she closed the box, regretting the fact she didn’t follow her father’s instructions in keeping the box closed.


Thank you, Pandora for closing the box at just the right time. HOPE remained in the box. For all the hard things, I still think HOPE is the infinite remedy.

Thanks HOPEspotters followers. More. To. Come.





Dear Al Meggs

You’re so nice playing with me. God bless you and yours forever”

Me: I enjoy it!

“You did it again!! CONGRATS!!”

Me: Thanks, my friend.

 

What a week this has been. What a month, in fact. In addition to working in hospice and palliative care, my sons have been squeezing the end out of summer and getting ready for back to school. My oldest is starting high school and my youngest is starting middle school. We, as a family, are making a lot of adjustments.

In times of stress, which is frankly daily, I look for distractions.I love what I do and I love raising my family, but I am not ashamed to admit that I get anxious about change. I look at my smart phone more than is recommended by professionals. I enjoy social media and I love to play Words with Friends.

So this week we got really busy. After a summer of taking it easy and allowing unlimited Fortnite time (don’t judge), we had to buckle down and do back to school stuff. School supplies. Hair cuts. Open houses. PAPERWORK. A lot of stuff.

And “work” didn’t quit. I had patients in crisis. Families making hard decisions. Lengthy conversations. It’s rewarding work but undeniably challenging and time consuming.

With all aspects of “life” ramping up, I needed escapes more and more. I noticed I was more addicted to checking my smart phone than even my own tweens.

I try to check social media with a wary eye. I know that the gorgeous family vacation pictures aren’t as perfect as they seem. I’ve learned not to engage in a twitter war about sports or politics ( and this I’ve learned the hard way).  I try to understand that Pinterest is a place of nirvana that we should only visit with curiosity and not use as a standard of expectation.

Words with Friends, however, is a safe place of gaming. People playing scrabble for the sake of distraction and brain engagement. And I love it.

Whew. You sure are giving me a run.”

Me: Makes it fun!

“Yep, thanks to you!”

I have a steady rotation of playmates. My dad, 16yaskin, is my most steady and equal opponent. Shana Miller, a friend from high school, is loyal and worthy. I have a few others here and there and I am compulsive about responding to our games.

“Al Meggs” has been a player with whom I’ve engaged for two years now. I think I was suggested to him as someone “scores like you” and he started a game. I couldn’t resist accepting and we began to spar. In that first game, Al sent a message telling me I had an “intoxicating smile”. I got scared and quit the game.

Al reached out on the message board and apologized for being “forward”. He admitted he was “clumsy with a compliment”, a self admitted “old fool” and just really liked having an opponent.  Initially wary, I restarted the game. Al became a really fun opponent.

Over the last two years, I’ve learned a lot, and not enough, about my friend, Al, over the WWF message board. For starters, Al is better at WWF than I am (but every victory I achieved was cheered by him). Al loved to know that I was a nurse and he called me an angel a lot. Al was vague in describing his life situation, he may have been a retired teacher,  but alluded that he was not close to his family. Al checked on me when storms were near Atlanta, and Al was usually the very first to wish me happy holiday greetings.

If a few games or days passed by, Al would send a message - an innocuous greeting or simple question. He admitted that he loved connecting with people.

To be honest, Anonymous Al, WWF Al, became one of my best friends. In my tumultuous life, Al was a constant. A positive reinforcement. When everything else seemed out of order and unpredictable, I really looked forward to logging on to my games with Al and the intermittent messages that accompanied them.

And now, I can’t find him.

I’m sorry to admit that a week or so went by before I realized that I wasn’t prompted to play with Al. After waiting a few more days, I “nudged” him. I watched his picture square, the one that shows his face with grey hair and mustache, jiggle. I thought sure I’d get a response.

Me: Where are you, Al? I’m worried. (July 20)

 

WWF: Al Meggs has timed out. (Jul 27)

 

Me:  Al. Let me hear from you (Aug 1)

 

It has been six weeks now. I’ve looked back on our messages for any clues and I’ve internet stalked him. For what I know, Al Meggs is gone. I can’t find him online and he has gone dormant on Words With Friends.

I’m crushed.

People often ask me how I could possibly work in hospice care. What I know, and they don’t,  is the ability to impact the end of life experience in a positive way is such an indescribable gift. Every day I am inspired and motivated by the goodness that we can provide to an otherwise awful experience.

Hospice, though difficult, serves people with anticipated loss. It’s the unexpected that can still take my breath away.

With my least favorite expression, “just like that”, Al is gone. He was someone for whom I cared and with whom I interacted daily. Without warning, he is gone and ridiculously, I am so sad. After all, Al Meggs was a stranger, right? His profile picture could be false. The messages could have been an act, but it didn’t feel that way.

In the chaos of my current life, I really enjoyed Al as a constant. That he isn’t and appears to be gone is a slap, a glass of cold water in my face. When everything else is moving at breakneck pace, I long for something that is consistent and unconditional. The sweet relief of reliability. Al was that.

Now he’s gone.

So if any lesson is painful, it must have purpose. I think Al was a teacher and my relationship with him has taught me some things.

  1. Connection is a universal need and an unquestionable privilege.

  2. Let’s push past anonymity. The internet, with all its flaws, can be a beautiful tool to reach the isolated. You’ll never know what you might find!

  3. Reliability is underrated and desperately needed. The world craves more of it.

  4. Sudden loss stings like a bee.

  5. Cheering for your opponent is undeniably endearing.

 

Al Meggs, I don’t know you and I don’t know what has become of you. I want you to know that your awkward compliments really did flatter me and your consistent check ins were so warmly received. You were a worthy WWF opponent but I’m most grateful that this online game introduced us to each other and made our connection.

I really miss you, Al. I hope that whatever words surround you now bring you to a circle of friends.

B.Y.E.   F.R.I.E.N.D.